the sorrow of motherhood

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i realize for some this may be an unusual way to start a post…but as mothers everywhere know, the moment you give birth to a child, a piece of your heart lives outside of your body…& so we feed them, kiss their boo boos, snuggle them & such…we try to protect them & simultaneously prepare them for the world…& sometimes the unthinkable happens…so today i am going to share some very personal details about our lives & my journey of motherhood…please note although i will address some serious health issues, i am not a medical professional…if you are concerned about your child’s health, please seek professional medical help…my goal is to simply share our story in hopes that i might help another mother with their own…(some of the images may be a hard to look at) & so here is our story….

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this is my SON

he is vibrant & funny…an incredible athlete…
a subtle mix of tenderness & independence…..

& this is my son…a child with everything in front him who can be anything he wants

and on january 4th, 2012 he was diagnosed with

TYPE 1 DIABETES

let me share a little background on how we got to this…the holidays were hard this year…between my husband & i and our three lovely children…if one of us catches the flu, it seems to make it’s way through our home making us sick one by one…so this christmas was less cheer & more coughs…we all battled a variety of symptoms…slight to serious fevers, aches & pains, throwing up…ughhh…it was a drag…but i am well equipped for these situations…i make tea & administer medications…i run baths & make little beds on the couch…i am good at this kind of mothering…i love to give comfort when one of my babies doesn’t feel well…sooooo, my SON got it rather bad…as if the flu took hold of his little body & wouldn’t let go…i was not too concerned because i had felt pretty bad, so i thought i knew what he was dealing with…he just started to look so frail to me…he was so hungry but seemed to be loosing weight…i guess that’s because he was still throwing up from time to time…my mind made me think it was all so normal…yah, he was so tired…but he had the flu, so that’s was normal…he was peeing the bed alot…but truth be told my SON has always been a bed wetter (oh, he’s gonna be so mad at me for sharing that)….so one night i started plugging in his symptoms in GOOGLE…shockingly, he had several symptoms of TYPE 1 DIABETES…i was at once alarmed & dismissive…WTF…my mother had in passing a week or so before noticed how my SON always seemed to be thirsty & that that was a sign of DIABETES…WTF…i hadn’t given it much thought until that night on my computer…& everything started adding up to the unthinkable…so in the middle of the night i left a frantic message on my SON’s pediatricians voicemail…i was ranting into the phone about DIABETES & is there any chance my sweet little athletic sharp witted sensitive son could have it ??? when i woke up in the morning, i instantly regretted leaving the message…i was an annoying mother, trying to self diagnose my SON…i made an appointment with our pediatrician & was already working on my apology for leaving the intense message…our pediatrician would then gently scold me for googling his symptoms & tell  me everything was fine, that the flu was going around & he’d be better in a day or so…WRONG…she walked into the examination room took one look at my SON…and said “oh my goodness, what’s happened to him?”…her face was kind & serious…& i began to panic…within 5 minuted she had tested his URINE & BLOOD…she walked back into the room & looked my squarely in the eye & said “i don’t want you to panic”(ummm, too late)…”i have called for an ambulance”…she continued, “you were right, your SON does have diabetes & he NEEDS to be in the hospital”…WTF…deep breath…hot tears start running down my face…even though i googled this, i don’t exactly know what it means, but somewhere deep inside i know it is not good…then i remember we are only a few blocks form the hospital…i remind her, & suggest i just drive him there…she looks at me & says he is in SERIOUS danger & NEEDS to be in an ambulance…WTF…the next moments are a bit of a blur…

i am in full blown panic…i am simultaneously having a bit of a breakdown & comforting my son who is rather stoic & calm…we are in the  ambulance & then in the emergency room….a little side note about emergency rooms…most mother’s know a trip to the emergency room is unpleasant & is usually met with several hours of waiting…my SON was immediately given a room & a bed…he was hooked up to an IV & a series of doctor’s were checking on him & explaining things to me…i secretly wished they would ignore me…i knew the prompt attention meant only one thing…this was BAD…really bad…somehow amidst all the commotion, i called my husband & told him everything…he was pulling our daughter’s out of school & heading to the hospital…so there i was with my sweet little SON…he looked so frail & sick…my brain could hardly digest was was happening…several doctor’s said we were so lucky…WTF…lucky??? OMG…then my SON was whisked into ICU…seriously WTF…connected to tubes…they kept poking him…& began administering insulin…i learned he was in DIABETIC KETOSIS…his blood sugar was over 900…none of this really meant anything to me…it was just all so scary…i kept trying to feel lucky, but somehow all i could muster was desperation…to add insult to injury…my SON is afraid of shots…yup, he literally tries to escape anytime he has to have one…so as the information unfolded & i realized the TYPE 1 DIABETES is an autoimmune disease, that currently there  is no cure for…he will need 4-5 shots everyday for the rest of his life…serious WTF…how do i explain to my SON what my brain can hardly understand…& so here we are…my son has TYPE 1 DIABETES…& i am inexplicably now immersed in the sorrow of motherhood….

SYMPTOMS OF
Type 1 Diabetes
(what i know now/that i wish i had known earlier)


-Frequent urination-
(my son had this, but for us it was not completely unusual, as i explained he was a bed wetter)

 

-Unusual thirst-
(my son had this too, but he plays hard & so it only made sense that he would be thirsty)

 

-Extreme hunger-
(he had this too, this was most hard to explain away,
because he wanted to eat all the time but was loosing weight)

 

-Unusual weight loss-
(again he has always been a lanky kid, but when i look at the photos now,
i am stunned by how thin he is, he lost almost 10 pounds in 2 weeks)

 

-Extreme fatigue & Irritability-
(look, he is an eight year old boy who plays hard & has mood swings,
so i hardly thought this was a symptom, but in hindsight…wow)

 

-Blurry vision-
(this is the saddest part to me…after his diagnosis, when the nurses asked him
about his eyesight, he said he was having a hard time seeing…i had never asked)

 

-Constantly tired-
(yup, he seemed so tired, but he was eating alot & active…this so could
have been a growth spurt, easy to explain this one away too) 


but all of them together = the unthinkable

TYPE 1 DIABETES

to all mothers out there…the one small token of advice i’d like give is this…

TRUST YOUR INSTINCTS

i knew something wasn’t right…i felt it…i wanted to be wrong…i still want to be wrong…DIABETES is hard to diagnose, becasue it does look like the flu…it is easy to miss…our pediatrician visited me the first night my SON was in the ICU…(i love her btw…she is smart & patient & kind beyond measure)…anyhow, she looked in my tear stained face & said “i think you saved your son’s life”…WTF…i looked at her baffled & said “what do you mean?”…she said “because of the voicemail you left, the fact that you mentioned DIABETES, made me look at your son through a different lense”…she continued, “i may have thought he just had the flu, like the rest of your family”…you see, my SON did have the flu…& that somehow trigged the DIABETES…it is not an obvious diagnosis…TRUST YOUR INSTINCTS…risk being wrong…or annoying or whatever…

….this is the day we left the hospital….

our days & nights are full of finger pricks & injections…
my sweet little SON has become a human pin cushion…
& we are truly trying to embrace a “new normal”…..

on the mend…this was taken last week at home with his SISTERS…xoxo

___________________________

i plan to post from time to time about his progress…i know there
are mothers eveywhere dealing with their own unthinkable sorrow
…my heart goes out to you…

a little more sweetness...

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  1. Mar 21-2012 , 02:26PM
    I am so sorry but at the same time so happy that you trusted your instint. The doc is right, you saved his life. It is so hard as a mum myself to even thing about it...
    All I wish you now is corage to be brave and help your son to deal with diabetes in the best way possible.
    A big hug to you all.
  2. Mar 21-2012 , 03:13PM
    Wow. My second son is "high risk" for type I due to genetic markers they now can test for (amazing,right?) but as the nurse was telling me the symptoms to look for I thought to myself "how could anyone diagnose this?" Especially as a newborn! You did good mama! Here is to your new normal.
  3. Mar 21-2012 , 04:20PM
    Oh Elizabeth, I can't imagine how helpless you must feel, but please know, we are lifting you and your sweet family up in prayer! "Now to Him who is able to do exceedingly abundantly above all that we ask or think, according to the power that works in us.” (Ephesians 3:20)
  4. sally:
    Mar 21-2012 , 10:37PM
    Dear Elizabeth, thank you so much for sharing your story about your son. He IS lucky to have you as a mother. I hope you and your family will continue to grow stronger together....blessings to you and your sweet, handsome son. xoxo
  5. Dani:
    Mar 21-2012 , 10:43PM
    Oh Elizabeth, how heart wrenching. You clearly are an amazing Mom. Thank God for intuition.
  6. Denise:
    Mar 22-2012 , 06:57AM
    Thoughts and prayers are with you and your brave little boy. Thanks for sharing this and getting the message out there!
  7. Mar 22-2012 , 08:32AM
    This is absolutely one of the most beautiful posts on motherhood I've ever read. Being a mother is a million emotions all at once. You summed that up in your story. We are praying for you and your family. Keep the faith. God bless you all.
  8. Kim:
    Mar 22-2012 , 09:40AM
    Beautiful, honest post. And one I feel very close to.

    My younger brother was diagnosed with Type I when he was 2. He is now 26. He had the same symptoms: the frequent bathroom stops, waking up in the middle of the night screaming because his blood sugar was so low, yet we could not wake him - yet we had no idea what was happening or why it was happening. I remember the tears - from them both - when my mom had to give him his insulin. But, you are strong. And so is he. Hugs to you.
  9. Mar 22-2012 , 11:14AM
    You are both so beautiful and strong. Blessings to you and your family.
  10. Mar 22-2012 , 11:49AM
    Elizabeth my heart goes out to your son, you, and the rest of your family! Thank God he didn't pass out or worse with a blood sugar of 900. Our percussionist at my church also has DM II and has a wonderful and active life: playing bongos, drums, etc plus teaching zumba and traveling the world. I'll pray for God's mercy and protection for your son. Thank you for sharing this chapter of your life.
  11. Mar 22-2012 , 12:30PM
    first, i want to say your blog is beautiful and i enjoy reading it daily. second, my brother was diagnosed with type I when he was 7 years old. now at 30, he one of the healthiest people i know! our lives changed the day he was diagnosed... we learned. we learned to eat smart, exercise smart, and to love smart. unbelievably, it made our whole family a little better. he learned at a very young age to be responsible for himself... and that carried over to so many other areas of his life. as a teen and other kids were experimenting with drinking and drugs, my brother knew he could not experiment. oddly enough, his diabetes made him safer. as an athlete, he stayed hydrated and nourished. i could go on and on.

    i just want you to know that your son is going to be ok. he has a good mother in you. i look forward to reading updates on how strong your son (and family) are growing!
  12. Mar 22-2012 , 04:09PM
    Elizabeth, thanks so much for sharing....thinking of you and your family. I too read your blog daily and LOVE your beautiful work. It is so inspiring, not only for the amazing photography but also the lovely way you write.
  13. Mar 22-2012 , 07:32PM
    i am so sorry to hear this and that your family has to go through such a difficult time. your son is very brave to have to deal with such a difficult disease at such a young age. thank you for sharing. you may have saved more than just your son's life by doing so. a mother intuition is a sacred thing and i think more mothers should listen to it and you are giving other mothers out there the courage to and forget how over reactive they may sound and go with their gut instinct. i wish the best for you and your sweet little family and hope everything starts to at least feel normal again very soon.
  14. Sarah:
    Mar 22-2012 , 08:22PM
    Elizabeth,
    I am so sorry to hear this news. I am also a mother, and I've had diabetes since I was 8 years old. My diagnosis story is actually pretty similar to your son's. With excellent management on your part and medical care, he will lead a very normal and healthy life. I have had an insulin pump since my late teens. I would strongly recommend looking into a pump for your son. Instead of shots 4-5 times a day, he would just need to change the site once every three days. I have found that my A1Cs are much better when using a pump, and it's far less hassle. Please feel free to email me if you have any questions. Best wishes to you and your family!
  15. Mar 22-2012 , 10:17PM
    Dear Elizabeth, I am so sorry to hear about the news of type 1 entering your family's life. It is a disease your whole family will face and your son will be a warrior. I've worked with JDRF for a few years and they work tirelessly to help find a cure and I hope you find strength in their efforts and resources. I feel a bit selfish soaking up all the beauty in your photography, blog and family. It literally can turn a frown upside down. But to see your honesty in this forum, it brings integrity to your work. Behind great art lies great emotion - good bad strong weak happy ugly. It's all there. You're a gift to your followers and never stop sharing. We're here to rally for you. Best wishes on your newest adventure. I have no doubt you and your family will find strengths you didn't know you had.
  16. Mar 23-2012 , 06:37AM
    Such a heart-wrenching post, but you ended it so beautifully with the last photo of you and your beautiful children. Your son looks SO much better and full of life, as do you. You are always an inspiration to me. :)
  17. Mar 23-2012 , 01:54PM
    I can just send hugs (((hugs))). We had good friends who went through this exact same thing with their oldest daughter. It is scary and the road is not easy. Doable but not easy.

    I have lived with the ER waiting impatiently for paperwork so that they can hook up my child to antibiotics. I have never seen ER personnel hover before and it is the most scary thing in the world. My daughter was considered an adult at the time but she was still MY child.

    Just know my thoughts are with you. You brought tears to my eyes with this post.

    blessings,

    elizabeyta
  18. Mar 24-2012 , 11:47AM
    Elizabeth, long have I admired you and your work since WPPI 3 years ago.....and to follow your journey and hear such intimate details in such an honest way both moves and inspires me. My heart goes out to you and your lovely son and family. I am so thankful and rejoice with you that you discovered this in time, but I also get the moments of WTF. Though I cannot relate, I am lifting up a prayer and sending much love, peace and joy your way for his health and strength. xoxo Jenn
  19. Mar 25-2012 , 03:08AM
    A beautiful post on a truly heart breaking situation. Its not the easiest thing to live with but you will all be there for him when he needs you. He might never like living with it but my little girl says please tell him that just sometimes its a good thing. I think she means stuff like getting special passes for a theme park that mean we don't have to queue! And yes JDRF is a great resource and there are some great groups started by Mums on Facebook. Thanks for sharing this and I wish you all well.
  20. Julia:
    Mar 25-2012 , 05:05AM
    Elizabeth,

    I encourage you to check out Team Type 1. It is an entire of cyclists with Type 1diabetes. The owner's mom, a personal friend of mine, went through a similar experience as you. Her son, Phil, went on to become a world renown cyclist and eventually formed several teams. If you would like to contact them, please reach out to me for an introduction. Here are some articles you might find of interest.

    http://uga.edu/gm/ee/pdf/pgs_32-37.pdf
    http://www.huffingtonpost.com/riva-greenberg/living-with-type-1-diabetes_b_992787.html

    Warmest regards,

    Julia
  21. Mar 25-2012 , 09:33AM
    so sorry to hear this
    xxx
  22. Mar 26-2012 , 06:27AM
    Elizabeth,
    My oldest brother, Brian, got juvenile onset type 1 diabetes at the age of 14. At the point when my parents realized that something was really very wrong and that this wasn't just a flu bug, they brought him to the hospital. When they diagnosed him, the doctors had the scary responsibility to inform my parents that his blood sugar level was at 1040 and if they had waited 2 more hours to bring him in, he would have died. The 1040 blood sugar level was a state record high at the time (for those of you that don't know, normal blood sugar levels are around 100).
    Brian will be 39 next week, and is in good health. Diabetes is not a death sentence, it's just a condition that needs to be managed. He lives a normal life, but just has to be aware of his blood sugar and pay attention to what his body meeds. And he even still get to eat cake once in awhile :)
  23. Mar 26-2012 , 08:03PM
    Hi Elizabeth

    I understand about being a mother and how hard it is for us to deal with sicknesses, disabilities and accidents.
    I felt like I wanted to die when my son Ricky was diagnosed with Autism at age 2 even though in my heart I felt
    there was something different about him months prior. But by the grace of God I deal with it.
    I also remember my son falling from the top of the staircase ledge at age 8 and breaking is wrist completely to wear his wrist was hanging sideways. I did call the ambulance because he fell 9 feet onto the stairs and I did not see it and was not sure what else he had broken. He lasks social and verbal skills so it made it even more difficult.
    I went with him in the ambulance and stayed up all night with him till the nurses, doctors and orthopetic surgeon were done.
    One thing I did not do could not do was stay in the room as the doctor rebroke his wrist and set it. That was a job for my husband. But this to passed and at 13 his wrist is perfect.
    Your handsome son will be just fine. Blessings-Maria
  24. Sarah Crowe:
    Mar 26-2012 , 08:30PM
    Elizabeth, reading this entry brought me back seven years ago to the summer I was diagnosed with type 1 diabetes. It broke my heart and brought tears to my eyes. I was 16 and had been away at boarding academy for 6 months. I was experiencing every symptom you listed but because I was away from home no one was monitering me. It was my mother who instinctually knew it was diabetes when I got home and got me the help I needed. Don't ever doubt your instincts.

    The road ahead it not a pleasant or happy one but will unite you together like you never thought possible. At this moment I'm sure all you are thinking about is survival. The days will become clearer, but grief will follow.

    The one thing that I wish my parents had done for me- and looking back I knew that what they wanted what was best for my body-giving me the resources, technology and the very best to protect my health. But what they left out was my mental health, what I needed most was emotional healing. It took me years, but the very best thing I did for myself was to see a counselor and work through the anger, frustration and hurt from the burden of this illness that I felt I didn't deserve.

    The days when I cried over each injection and each finger prick slowly faded and each adjustment just became a part of normal every day living.

    Although it may not seem like it now, everything will be ok.

    I am praying for your family.
  25. Mar 27-2012 , 01:26PM
    awwwww. love to your family. so glad to see that last photo where he is smiling and hugging his sisters. peace.
  26. Mar 27-2012 , 07:52PM
    Oh Elizabeth, I am so thankful your motherly instinct kicked in. Often when my kids are coming down with something, I swear I can smell it. Their breathe smells differently, my husband things I am crazy but I haven't ever been wrong when it comes to sick breath.

    Thank you for sharing your story and I will keep your little man in my thoughts.

    Christine
  27. Mar 27-2012 , 09:52PM
    I am a mother... an ER nurse... and a photographer.... I hear and see and feel your story. Tight control of DM is the only control. Whatever it takes.... make it happen. I wish you both all the courage in the world.
  28. Jess Diniz:
    Mar 28-2012 , 10:37AM
    Praying for it all right. God bless you and your beautiful family!

    Jess
    From Brasil
  29. Mar 28-2012 , 01:25PM
    hi elizabeth,
    my heart is heavy for your experience and story. i hope for the strong endurance of a child's innocent and happy heart & will for your son. thank you for sharing.
  30. LR:
    Mar 29-2012 , 09:22PM
    I'm so sorry that your son has to go through this. I have type 1 diabetes and my biggest fear is that my children may get it as well. I can tell you that, although it is hard to adjust to, HE CAN DO IT! I think it's great that you're supporting him so whole completely. You are a wonderful mother. God bless.
  31. Mar 31-2012 , 02:32PM
    Bless his heart - (ok - I'm from NYC now living in Texas but I truly mean that) - You are a good mother to diagnose that - I do it all the time - better to be safe than sorry - Keep researching something that may bother you - and obviously in this case you were right.

    ok - I'm trying to edit this comment and for some reason it won't let me - I meant to say keep researching anything you question - Keeps you on your toes -
  32. Apr 02-2012 , 10:55AM
    Dear Elizabeth,
    For all the hope that you've given me and the world with the beauty you capture, I wanted to offer some hope back to you.
    I have been doing a lot of ameteur research into a lot of scientific research accomplished by others. There is so much information out there above and beyond these short posts, but I wanted to be able to just open the avenue to you in case you found it useful. I know it's helped me tremendously with my own auto-immune and mental health symptoms.
    http://whole9life.com/2011/03/the-whole30-type-1-diabetes/
    http://wholefamilystrong.com/praise-reports/
    Best to you and your family,
    Kristina
  33. Apr 02-2012 , 09:30PM
    Reading ths at 11:28 next to my daughter's bed in the intensive care unit. Thank you for sharing. It's going to be a hard road for us, just got the diagnosis for type 1 today. I really appreciate this. Thank you.
  34. Apr 02-2012 , 09:43PM
    Hi Elizabeth, I was diagnosed with type 1 diabetes nearly 19 years ago, at the age of 9. I can't imagine what hell you're going through during your son's diagnosis, like I can't imagine what my parents went through during my diagnosis. I'm so SO glad that you brought him to his doctor in the nick of time...because you're aware of his condition, he will live a LONG life, and an awesome one to boot! Your family is in my prayers.
  35. Apr 19-2012 , 05:31AM
    Elizabeth, my heart breaks for you. Your story is so similar to ours, almost 7 years ago. My son was diagnosed with Type 1 diabetes at 4 years old. It was after a bout of the flu. He was in a vicious cycle of insatiable thirst and peeing - all night. It was more noticeable at night. I, too, googled the symptoms, but couldn't/didn't want to believe it. When the pediatrician at the ER confirmed that he has diabetes, my world came crashing down around me. A psychologist was assigned to us - for which I am grateful

    The life adjustment was huge, nothing will ever be the same. But life is good. We do what we need to to keep him healthy...and live our lives. He's sweet, humourous, and happy. We don't live around the diabetes-the diabetes lives around us.

    {{{{HUGS}}}} My thoughts are with you.

    Mae.
  36. Lacy:
    May 09-2012 , 08:39AM
    Thank you for posting the pictures of your son and his story. My son was diagnosed with T1D March 28, 2012 at the age of 4. This journey is FILLED with sorrow but also filled with joy. Before 1922, our babie would be dead within weeks, maybe months if we were lucky. Through that vision of our children already being taken from us through a horrible, painful death, it makes the shots and finger pricks a lot easier. Insulin is not a cure but its life saving and I am SO grateful for it. When I hear my son giggle, for a minute, I can forget about the sorry of T1D. :) *hug*
  37. May 24-2012 , 07:45PM
    Elizabeth,

    I know this was a few months back, but I hope he is doing well. Thank you for sharing your personal story, I loved this piece, I can hear every inch of your personality! :)

    P.s I have no idea why I read it in a cockney accent :)
  38. sg stack:
    May 25-2012 , 06:02PM
    My Son was diagnosed with Type 1 Diabetes at age 5, I thought it was the end of the world. But looking back now I see how naturally insulin injections, testing blood sugar levels, always having some form of glucose handy simply became part of his daily routine, like brushing his teeth. There were ups and downs sure and a few really nasty insulin reactions – he is a robust 32 now and every bit who he was meant to be...
  39. Jun 02-2012 , 08:45AM
    thank you for all the beautiful words of encouragement & kind words...to the mother's who have children that are newly diagnosed, i feel your anguish & wish you lots of love...xoxo, elizabeth
  40. Nov 15-2012 , 02:20PM
    I stumbled on this entry while looking for some photo inspiration. I had a similar incident just three weeks ago, although it was pneumonia aggravated by asthma. They had already called the ambulance from the pediatrician's office when I said that I thought he was having an allergic reaction to the medicine they were giving him. He started losing consciousness and his oxygen levels were plummeting. In the doctor's office. The doctor said sometimes the airways react like that from the medicine in the nebulizer. Huh?

    The paramedics treated him as having an asthma attack, not an allergic reaction.

    The ER doctor treated the asthma, not the allergic reaction.

    The ER nurses immediately treated the allergic reaction with intervenous Benedryl and steroids. Within 20 minutes, he was recovering.

    He stayed in the hospital for two days, because he did have pneumonia. But my gut was right. The pediatrician also came to see me the next morning and told me so too.

    Trust yourself and speak up.

    I am learning.

    Wishing you courage and conviction on your journey with your son.
  41. Jan 07-2013 , 01:51PM
    This is the thing I tell new mothers the most- trust your instincts, trust your instincts. Even if you don't understand why or can't explain it, still trust your gut. So glad you got him there in time and so grateful that he's getting the treatment he needs. My heart goes out to all of you.
  42. Teri:
    Feb 05-2013 , 10:44PM
    Someone forwared me your blog. I just had this experience last week and you captured it to a t. Fortunately we didn't hit hte throwing up stage but we were almost there. And like you, if he had gotten there I would have thought "oh it must be the flu and that is why he is so tired and thristy". You captured the feelings perfectly (both with this one and the 1 year anniversary. We are 1 week in and are just beginning to feel like we are getting our head out of water.
  43. Laura maggioncalda:
    Mar 08-2013 , 10:07PM
    Hi, I am a insulin dependent diabetic, I am so sorry to hear about your son. I wanted to tell you about two things I think you would love to o keep your sons blood glucose in check. The omni pod wireless pump. I love it, if he's active, he would also love it. Also, the dexcom continuious glucose monitor, these two help me so much with my diabetes. My prayers are with you. Good luck.
  44. Catherine Desmond:
    Dec 07-2013 , 12:13AM
    Elizabeth, first let me just say how very sorry I am to hear of your sons diagnosis! I am though so glad that he is feeling better. Although I do not have any children as of yet I do know of one lady who does have children with this disease, me being one of them which means of course I'm talking about my parents/mother. She and my father (both healthy and disease free) had 6 children, and managed to have 5 out of six develop autoimmune diseases. My eldest sister developed schleroderma at 17 or 18 (another disease which there is no cure for), my brother developed type 1 diabetes at 21, my other sister Developed type 1 diabetes at 3 years old, my sister Mary developed rheumatoid arthritis in the past 8 years or so (she's 29 right now) and I developed type 1 diabetes when I was in the 3rd grade. Unfortunately, diabetes is not a easy disease but hopefully someday we will have a cure for it and all the other diseases out there. Got to have hope right! :)